Hi faithful friends and family,
Last Saturday (4/21) I was discharged from Johns Hopkins (after a 13 day stay). As Jack wheeled me out of my hospital room and towards the car he asked me, "Don't you feel like the hall should be lined with patients and nurses cheering and applauding?" I think we have been watching too many movies :0) However, in my mind leaving the hospital was just as exciting as if there had been a pep ralley.
I was so excited to leave Hopkins that I fell asleep during the ride home. We had a nurse come to the house Saturday evening to show Jack and I how to use my PICC line to get nutrition in me. Jack was amazing and is taking care of hooking me up every evening and disconecting me every morning. It is painless, just tastes bad. The benefit of this process is it will help me gain weight and strength while allowing my GI track to rest. Of course, I'd rather put on weight by eating cheeseburgers and milkshakes :0)
I slept most of the weekend and Monday. My highlights were taking a bath at my parents with the help of my mom and sister. I cannot get my right arm wet because of the PICC line. My mom and sister also washed my hair. Wow, did that feel great!
Tuesday through Thursday I rested at my parents home. If I get up too quickly, I get lightheaded and everything goes black. Thus, I mainly stay in the recliner. My goal for right now is to listen to the Bible on my ipod from Genesis to Revelation. My mom and I are listening together and writing down verses that speak to us in some new way.
Some praises: being home, kind nurses that come to our home, my blood work (taken twice this week) has been great, my bladder has been strong with getting lots of fluids at night, being able to sleep, watching a nine-month old giggle and army crawl on the floor, cards and emails of encouragement, amazing caretakers (primarily Jack and my mom), receiving a prayer shawl, and being blanketed in prayers.
I return to Hopkins this coming Tuesday (May 1) for a follow up and to find out the next step. I am the weakest I have ever been which has been very challenging. I am learning to rest often. The phrase I am currently holding onto is "God's strength can be seen clearer in our weakness." Thank you for your continued prayers! My specific requests are for continued healing, wisdom for my family and the doctors, and blessings for my caretakers.
As always, I am delighted to hold up your prayer requests and/or praises in my daily chats with God.
Blessings and deep gratitude,